Juvenile Arthritis Awareness – Christine’s video

Today Christine Schwab posted a video onto her Facebook page. It is one of the most emotive videos I have seen, and it’s all about Juvenile Arthritis awareness! I will admit that I did cry during it. I don’t think people, who aren’t affected directly by JA, realise how hard it can be. I recognise so many of the kids on the video! I’ve followed their blogs, spoken to their parents, followed their pages. I think the video is just that little but more emotive when you know some of the kids on it, you know their story, you know their hardship.

As I am writing this post I’m just thinking of some of the kids and what they have been through. Hundreds of needles, chemo, hospitalisations, infections, pain, swelling, fevers, surgeries and the list goes on. If you know anyone who has arthritis this video will really touch you, especially if that person you know is a kid.

The second song in that video really got to me. Every single word is true for JA…

“All the lonely people cryin’
It could change if we just get started
Lift the darkness, light a fire
For the silent and the broken hearted

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up you girls and boys?

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up and use your voice?

There’s a comfort
There’s healing
High above the pain and sorrow
Change is coming
Can you feel it?
Calling us into a new tomorrow

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up you girls and boys?

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up and use your voice?

When the walls fall all around you
When your hope has turned to dust
Let the sound of love surround you
Beat like a heart in each of us

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up you girls and boys?

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up and use your voice?

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up you girls and boys?

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up

Won’t you stand up
Stand Up
Stand Up
Won’t you stand up and use your voice?”

JA isolates kids and families, without people like Christine and The Arthritis Foundation these families would stay isolated. The comfort? That’s the support of all the other families going through EXACTLY the same thing. The healing? That’s the cure we get one step closer too every day! When someone is diagnosed with JA, the world literally falls apart for them and their family, they have to face a totally new situation, a situation that demands a strong mindset to choose between two meds that have equally horrible side effects, a strong family to deal with the mental strain that JA puts on each individual family member, and a really strong kid!

There is no doubt in anyone’s mind, that JA needs more awareness.
We all need to stand up for JA, together.

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