Tag Archives: bursitis

A busy few weeks

My life has been pretty hectic recently. I found out I was going to go to university about a week ago (on the 14th) which I really wasn’t expecting based on how I thought my exams had gone, so I hadn’t bought anything that I needed. For any of you who have moved away to go to Uni, you’ll have some idea of what it is like to find out that you have to get 6 freaking pages of stuff [i.e student essentials] in 4 weeks… and for those of you who don’t it’s super stressful, exciting, nerve-wracking and really expensive! This week I have had to pay out over £500 for necessary things including the deposit on my accommodation, the gym, Uni essentials including pots and pans, bedding, towels and bathroom stuff, and my Gym membership. It’s been crazy expensive week, but thankfully I think I have got almost everything I need to move out, so the next few weeks shouldn’t be that expensive. I have a new found respect for anyone who has ever had to move out and get new stuff because it is far more difficult than I expected!

I am also happy to report that I am back on track with my asthma meds… I took an impromptu break from Flutiform and relied solely on Ventolin for a few weeks which was a stupid thing to do and was a result of the massive amounts of stress I was under from certain events going on in my personal life… I have now either resolved or come to terms with these issues and I am feeling a lot happier. However, my lungs are still hating on me for leaving them without a controller med for a while and so I have had to up my dose of Flutiform back to the 125/5 inhaler but I shouldn’t complain because it was my fault. I am hoping that in a few weeks everything will settle back down to normal, but if not I shall just phone my nurse and ask her to change my repeat prescription back to the 125/5. And that has also reminded me that I need to book in for my flu jab! GET YOUR FLU JAB GUYS! There is no point getting ill if there were steps that you could have taken to reduce the risk.

Now onto the hip… I think I mentioned that my bursitis has come back in my hip, or maybe I didn’t. I am incredibly tired right now because I haven’t slept well in about 2 weeks because of my bursitis and it is affecting my memory so I can’t actually remember if I have told you about my hip. So in short, my bursitis came back about 2 weeks ago after no problems since the end of June when I had a burst of pred. There was a few low points last week where I was feeling really sick because of the pain but thankfully I wasn’t actually sick. I am now considering my options for treating the bursitis again and as far as I can tell I have 5 options:

  1. Continue treating with 1000mg of Naproxen a day, and 1000mg of Paracetamol PRN/every 4 hours, and Ice
  2. See my GP and ask about a burst of pred or a cortisone injection
  3. See a private physiotherapist
  4. Phone my Rheumy
  5. Do a combination

So Option 1 is what I have been doing for the last 2 weeks and although it’s preferable to doing nothing, I am still having a lot of pain and my hip is still warm to touch (except from right after I have iced). As for Option 2, I am feeling particularly self conscious about the way I look right now so pred is definitely out of the question but I might be up for a cortisone injection into the bursa if the GP can guarantee that it will at least help a bit. Option 3 is out of the question, but it was something that my Mum brought up in the middle of the night when I was still wide awake and intercepted her on the landing when she was going to get a drink of water… I have looked at the prices of the private physiotherapists around here and they are all far too expensive, and there is no guarantee that it will help. You may be wondering why I didn’t think about NHS physios, and whilst every physio I have had has been awesome, the waiting time is really long and I just don’t have the time, or the patience, to wait. Option 4 was another idea that my Mum had, again in the middle of the night, but since I have an appointment on the 17th of November [the appointment letter came this week, along with a letter saying that I DO NOT HAVE LUPUS] I might just try and wait it out. The Rheumy also said to phone her if I was flaring but this technically isn’t a flare… or at least, I don’t class it as a flare. Option 5 seems like the best option, there is no way I am going to let my GP take me off Naproxen since it’s the first time in years that my joints have felt relatively good, with the exception of my hip, but I don’t feel like I can carry on with just Naproxen and Paracetamol, as much as I hate to admit it, so I guess I might see about the cortisone injection… Especially because I have read that a cortisone injection could “permanently resolve” the bursitis, which after 2 years would be excellent!

I have been planning/thinking about some more posts that I could do and I may have also found another person to write us a guest post, which I am very excited about… and I also need to ask Justin of Haika Clothing to do another interview with me to tell us about the progress he has made [I am currently saving up to buy some more of his awesome shirts, and $5 of every purchase goes to an asthma charity!]. For more frequent updates check out my Facebook page.

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I’m lost

I finished my pred burst over a week ago and I can’t really explain how good it was to go 2 weeks with hardly any pain. I have had chronic bursitis in my hip for 2 years, and this is the first time in 2 years that it hasn’t hurt at all, even when I prod it. Of course the pred is starting to wear off and the usual aches and pains are coming back which is disappointing because I was hoping that I could get longer… I have had bad joints for the best part of a decade, and this is the first time since then that something has touched the pain… It is hard to explain how good it feels when you are used to an average of 2-3 hours of morning stiffness that suddenly with the help of 8 tiny tablets that you only get 15 minutes… That is less than 10% of what I am used to.

The pred started to wear off earlier this week, and my morning stiffness now lasts between 1.5 and 2 hours, which is still an improvement but after seeing that I could only have 15 minutes of morning stiffness, I’m not that impressed. The question is, what should I do now? I don’t have any active inflammation, but my joints are getting sorer, and they are getting stiffer… I don’t know whether I should try and see my GP and see what he says because I don’t want to let my joints get to where they were before. But there isn’t an awful lot that my GP can do in all honesty because, 1, I am refusing to take pred again unless I really need it and 2, he seems unwilling to prescribe any other NSAID except from Ibuprofen despite the fact I am supposed to be taking Indometacin long term… He even tried to tell my that Ibuprofen was EXACTLY the same time as Indometacin, which I find is quite patronising. They are in the same drug class, and they work with the same aim, but they are NOT the same medication.

So I wondered whether I should phone my Rheumy, who believes there is something going on but neither has the motivation or time to try and find out what that is… She told me to phone for an appointment when I am flaring, which I am not but then is pred helps maybe she should know that? Could that give us a clue to what is going on?

I would phone my Physio, but since I was 18 last month I am not actually under the care of any physiotherapist anymore… Which makes the whole hydrotherapy situation significantly more difficult because I don’t have anyone trying to sort it out for me. To sum up what has happened with hydrotherapy… I was referred in January 2014, I was approved in May 2014 and nothing has happened since despite many phone calls and one visit. The receptionists have tried their best but it seems like there is nothing anyone can/is willing to do and so it looks like I won’t be getting hydrotherapy. Or even if I was suddenly offered a place for hydrotherapy, I won’t be able to go now because I don’t have 6 weeks clear in my timetable for my 6 sessions… I’m not too upset about hydro because I had a feeling right from the start that I wouldn’t get it, what I am upset about is that I have been repeatedly told that I will get hydro which is a flat out lie, because no one can be bothered to do anything. It would have made my life significantly easier if they had told me that I couldn’t get hydro right from the start so I wouldn’t have spent literally hours on the phone trying to sort it all out.

So now I am lost. Actually scratch that… I have always been lost in this NHS system, that’s why it takes me 6 months to get blood test results and the results of my scans, and that is why it took me 17 months to get an appointment with my Rheumy which are supposed to take place every 6 months, and that is why I don’t know who to go to now… because I am totally lost in this fricken system. And if I do actually get into University to do Physiotherapy, I swear that my patients will be treated better than what I have been treated, and I shall make sure that they are not lost.

Prednisolone burst!

I apologise for my absence on this blog, I have been doing my A-Levels and I have been revising like crazy… My last exam is on Friday so I should be back on here like normal after that.

I am going camping next week with some friends which I am really looking forward to… but as usual, my joints like to remind me that they aren’t that good. These past weeks my actual joints haven’t been that bad but having said that my ligaments and bursitis have been giving me a lot of problems. Thinking back to a few months ago when I walked just under  6 miles in one day, I physically couldn’t walk the next day… I could hardly stand, and my Mum was at the point where she wanted to take me to A&E, I do not want to be in that situation next week when I am away with my friends. I have been putting off talking to my GP about my pain, and my joints for a while because I was always scared to be accused of drug seeking but this week I decided that enough was enough and it was time to talk to my GP. I didn’t have an exam on Monday so I rang my GP surgery and was informed that my GP didn’t have any appointments and didn’t have time to ring me but if I rang back later in the day the receptionist could pass on a message to me from my GP. So I rang back and I was told to take Ibuprofen and Co-codamol (Codeine and Paracetamol)… Not what I wanted to hear. If Ibuprofen worked, I wouldn’t be phoning my GP to ask for an NSAID and I flat out refuse to take Co-codamol on the grounds that it can be addictive.

Monday’s attempt to get some proper pain relief didn’t go very well, and I had an exam on Tuesday which meant that I didn’t have time to phone the GP. So I rang today instead, thankfully my GP did have time to take my call this time but the phone line was terrible and I could hardly hear what he was saying. I asked him if he would prescribe an NSAID since I am supposed to be on an NSAID (Indometacin that my Rheumatologist prescribed, however due to side effects I cannot take it). My GP felt that  a steroid injection into my hip would be more effective than an NSAID but he also thought that my ligaments would also need a shot, meaning that I would have needed 5 injections which we both thought was a bit excessive since I set off on my Camping trip on Sunday. So it was decided that a course of oral steroids would be the best option… I haven’t been on Prednisolone since I was about 11 or 12 and I have never been on Pred for my joints, so I am interested, and excited, to see if it will help. Starting tomorrow I will be on 40mg of Pred for a week [I may have accidentally written 7 weeks on Instagram and scared some people… Sorry about that guys!], and I don’t have a taper… Some people have assured me that because I am only on a week of Pred that a taper isn’t necessary whereas other people aren’t so sure… So I think a trip down to the Pharmacy is required just to check if everything is okay.

The dreaded Devil Tablets

I did ask my GP what would happen if these didn’t work, or if my Bursitis came back (I am considered to have chronic bursitis since I have had it for 2 years now) and he said that he could prescribe these again, but I don’t really want to have to depend on oral, or on injectable, steroids to control my bursitis. My GP didn’t actually seem that bothered, and I don’t think he quite grasped the fact that I HARDLY EVER SLEEP THROUGH THE NIGHT BECAUSE OF PAIN… And because I can’t actually get a physical appointment to see my GP, I don’t understand how I am going to go about getting my pain under control after I have finished this course… But I can worry about that as and when it happens, and for now I can enjoy a week of being pain free! [Or at least, a week with less pain]

Flutiform, glasses and joints

After spending an hour total in two pharmacies yesterday to no avail, I have finally got Flutiform.

The two pharmacies closest to my house don’t stock Flutiform but thankfully a pharmacy close to my college do stock Flutiform so as soon as I got to college today, I ran down and got it before anyone else could nab it! I was quite surprised, at how massive the box it came in. I didn’t know how big the inhaler was so I presumed that it must have been bigger than all of my other inhalers but no, it’s the smaller than ventolin! In fact it is almost the same size as serevent.

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Don’t you think that this box is a ludicrous size for the inhaler?!

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I must admit that it is a really snazzy inhaler, my friend even commented about how all inhalers should look like Flutiform does!

From the title, you know I’m not just blogging about Flutiform. Tomorrow I am getting my eyes tested because everything further than 5 metres away is blurry in one eye, but the other eye is absolutely fine. It wasn’t too long ago that I got my eyes tested last because it was taking me a while to focus with that same eye I am having trouble in, and now it just doesn’t focus at all. Although I am hoping that I won’t need glasses.

I’m also struggling quite a lot with my joints today. My morning stiffness has been increasing over the last few days and my bursitis feels like it is burning a hole in my trousers because it is that hot. My ligaments are joining in the fun too, although they aren’t hot to touch, just very sore and slightly swollen. I was supposed to get a call from my physio today to explain to me what is going on with hydro but that hasn’t happened, so I will have to call again on Monday to see what is going on.